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{She/They} {♿️Dynamically Disabled♿️hEDS-MCAS-POTS-PEM-ME/CFS-Dystonia-LC& more}

フォロー数:567 フォロワー数:834

I took my first (titration) dose of the new med this afternoon & I’m seeing some positive effect…I’m only being cautiously optimistic at this point because I’ve been let down so much.

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The pain started in the fall of 2019, intensified in August 2021 and never has improved only gotten worse…it started getting worse again last Saturday. It’s getting to levels so intense I randomly cry because my body just can’t handle it.

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My delicious gluten-free dairy-free birthday cake with edible flowers that got for me! It’s from a local GF bakery! It’s so delicious but so sweet, ☺️ I’m glad I can cut tiny slices otherwise I would just have a sugar crash after every piece! 😂

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Welp, the last of my munny is gone 💸…they took it to pay twards my outstanding loans…it wasn’t even close to a loan payment…it wasn’t even enough to buy meds this month…I feel like I can’t be too mad b/c they’re putting my loans into forbearance but it still stings bad.

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Paint, painting supplies, & hardware has been obtained thanks to ! The color is perfect! 💖

Next: I have to apply wood filler & finish prepping the desktop for painting. Unfortunately I’m currently having a bad flare-up so that’s gonna take longer than it should.😩

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