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Neurofibromatosis Networkさんのイラストまとめ


Neurofibromatosis (NF) Network is the national non-profit serving individuals affected by neurofibromatosis. Leading NF Advocacy, Building NF Community.
nfnetwork.org

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# fda neurofibromatosis koselugo selumetinib mek onevoice nfadvocates doctor event nfnetwork endnf eventplanning nf picnic nfstrong summerfun chicago nfhopeconcert gavincoyle music benefitconcert coffee scullycoffee4nf thexfiles nf1 nf2 schwannomatosis

The has approved the FIRST treatment for (#selumetinib) is a inhibitor used for the treatment of pediatric NF1 patients with plexiform neurofibromas. Koselugo was co-developed by AstraZeneca and Merck.

https://t.co/vXijxcHbug

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2020-04-14

An incredible few days spent educating Congress on the importance of continued federal funding for NF research. As our advocates return to their home states, we say THANK YOU advocates of the NF Network Advocacy Program!

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2020-02-12

The year is coming to an end. If you're looking for a last minute check up reference this list for a near you: https://t.co/1brasN3wko

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2019-12-11

Don't see an in your area? Interested in starting one? Contact the office at admin.org or 630-510-1115. We'd love to help you start something!

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2019-08-15

Tomorrow is the Annual Summer from 1:00 PM - 4:00 PM at Johnson Park (2600 Wilson Ave, SW, Walker, MI 49534). See you there!

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2019-07-28

The annual NF Summer Picnic is coming Sunday, July 28! We hope we'll see you there! https://t.co/UDyMArNSzm

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2019-07-19

& have one thing in common! The event on February 23rd. By supporting you'll be helping us support families affected by NF & you could win this amazing original art donated by Piper Maru! Gillian Anderson

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2019-02-07