# may12 myalgicencephalomyelitis chronicfatiguesyndrome mecfs fibromyalgia fm meaction meawareness meawarenessday spoonies pwme canyouseemenow me cfs pwmecfs goblue4me meawarenessweek chronicpain chronicillness millionsmissing2019 meawarenesshour superstarstreamers shareyourart lockdown verysevereme bedbound myalgice spoonie invisibleillness autoimmunedisease anxiety spoonielife ehlersdanlossyndrome health mentalhealth chronicfatigue tiredaf sleepyheads sleepyhead awt tiredbuddy

My 2016 image depicted that although people with can appear well, under the skin the ME is affecting the muscles. Last years image depicted how ME takes a hold of your body and is always there whether you can see it or not.

1 5
2018-05-12

Unable to attend myself, I made a bed to go in my stead. It will be in Sheffield city centre on Saturday and Sunday, drawing attention to the fact that 25% of people with ME are housebound or bedbound.
Thread 👇

142 309
2019-05-09

Sheffield fountains and Cascades have gone blue!
And the 25% bed is currently making it's way around . More photos to follow!

Remember is at Barker's Pool tmr, Sunday 12th May, 10am-4pm, speakers from noon!

32 69
2019-05-11

It’s M.E. Awareness Week. A condition often misunderstood. M.E is individual to the person who has it. To our M.E pals, we see you, we got you and we want you to continue to share your stories.

8 14
2019-05-11

My face when I’m in a steady level of high pain, because facial expressions increase the pain. I’ll still probably go to the event in toronto around 1pm out of sheer stubbornness.

4 20
2019-05-12

Share the stories and important information about M.E. & RT the words of others, together we can break the isolation and invisibility sufferers have been forced into for so long.

9 9
2020-01-22

[LIVE💗]

CHARITY STREAM for ALL DAY TODAY!!

- skyrim sabotage
- surgeon sim
- goat sim
- D&D

Come on in to see all the fun incentives & milestones!

https://t.co/WyinD9tdh2

12 8
2020-05-09

PLEASE LIKE AND RETWEET ❤️ Depicting my 15 year with in my ‘cell’ yet still desiring the technicolour of a normal life - bursting from my heart.

32 75
2020-05-12

I'm a caregiver for a one of the Our lifestyle has become everyone's norm. Housebound. Unable to find answers in modern medicine. Zoom appointments. Myalgic Encephalomyelitis cases will increase with COVID-19 so this could remain your norm. See

6 28
2020-05-12

The pilgrim souvenirs became evidence of completeing the pilgrimage, but also as a devotional aid which could be carried about, shared with people who were unable to take part in the pilgrimage: those Medieval who were suffering chronic illnesses perhaps? 5/8

4 15
2021-03-27

Thank you to everyone who bought a card to raise funds for 's Tea Party for M.E.💙

The first batch has just been sent this morning!☕️💌

If you want to grab one, you can find them on my shop: https://t.co/MN3VZN77Ji


0 0
2021-04-30

Want to buy a cute card to raise funds for 's Tea Party for M.E.?💙

I got you covered!☕️

The cards come with their own individual envelopes & are from a professional printer 💌

You can find them on my Etsy shop: https://t.co/MN3VZN77Ji


2 2
2021-05-04

Just wanted to say how proud I am of everyone who took part in the movement today, whether it be at home or in person. I know how difficult it is and I know there are sunny days waiting for us all in the future. Keep fighting!!

4 10
2022-09-20

Minted this for a raffle to win 0.125 ETH!🤞🤞🤞




Mint a SleepyHead for only 0.03 ETH to get a chance to win 0.125 ETH

🤑 Up to 0.5 ETH to be won 🤑

22 33
2022-11-16