Another vignette from few weeks ago. “Go away! Leave me alone!”, I often tell my progressive muscle wasting disorder (GNEM).

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My muscle wasting disorder personified as this monster is an unwitting soul whose merely doing what he was designed for. Somehow our lives intertwined and we must find acceptance and love if we are to make it through.

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More concept art from a couple weeks ago. Sometimes me and my monster (my rare disease) have good times.

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On this we will take a look at some of the rare people are dealing with today. Salivary gland cancer accounts for approximately 3% to 5% of all head and neck cancers. Learn more: https://t.co/YeuqQtbTMz

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Structure based drug design by and identifies lead compounds to help understand and ultimately treat

https://t.co/WBExz5zGzV

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Huge thanks to for capturing the team so perfectly!
You are so talented & we just LOVE this.

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Day. Hi, my name is Kam Redlawsk. I’m an LA based artist who documents her rare, debilitating and degenerative muscle wasting disorder and its emotions through illustrations. My art and blog: https://t.co/fVOKY0RIVB

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Colouring the classic ‘my Dad not listening in the car’ scene...

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Today is special! :D I got my pension, it’s , and so my luxury gift to myself for Feb/March is this awesome adopt from <3 🐰

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J-5 avant la journée internationale des maladies rares 2018 pour l'occasion, découvrez au fil des jours nos 15 affiches de sensibilisation au syndrome de Williams, symbole de nos 15 ans d’action !

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Portraits of Victor & other children w/ are part of a exhibit on display at Broad through 3/31 https://t.co/5Yvk9oGnJ4

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It is important that we all take today to acknowledge the devastating effects of "Boneitis".

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