# epilepsy doose lgs syngap1 dravet rarediseasedayusa epilepsyawareness hope rarediseaseday ibcgang cosmos nonprofit rarediseasemonth pierrerobinsequence pierrerobinsyndrome vanmaldergemsyndrome rarediseasewarrior worldsclerodermaday scleroderma rarediseases superheroprojectkids superherokids 難病スレイヤー 難病 薬剤師 薬師 keratoconus 28febbraio sellmyart art disabled workfromanywhere tarlovcystdisease pain artsy artforsale artistontwitter paintingthrupain artgallery kidsuperhero curesanfilippo lemonsintolemonade ulcerativecolitis disabledartist bisousforléo

is common but it is also an umbrella that covers many rare diseases like and many others.

14 45
2023-03-01

GM.
So far, 10 badges have been dropped to holders of "classic cars" - check your wallets
Big thank you to for making this campaign possible and for the great technology.
https://t.co/Q0v1Hwko7E

30 77
2023-02-19

Sold! "mustang 1" "mustang 2" & "corvette 01"
Thank you for collecting and supporting with
You have compassion ❤️❤️❤️ and give me 🥰
$OSMO https://t.co/Q0v1HwkVXc

0 4
2023-02-15

Sold! "Porsche, 2, 3, 4" and "mercedes benz 1"
Thank you collectors for scooping these beauties and to bring awareness for
On behalf of my family, especially my grand nephew, You have given me hope 🙌✨❤️‍🩹
https://t.co/Q0v1HwkVXc

1 4
2023-02-12

We can help bring awareness for this and earlier diagnosis and proper treatment for the afflicted!

0 1
2023-02-10

New drop "classic cars" for
Collectors will receive a badge AND a fantastical animal nft. 🙌
All proceeds will be donated to
18/18 listed on
link below 👇🧵

52 118
2023-02-09

I don’t know all of the circumstances, but in the back of your mind & on a piece of paper, write: ALWAYS GET A SECOND OPINION! Knowing all options(if fortunate) empower you. I have lesions(tumors) in my brain due to It all depends on where surgery& life/death. LoveU

0 1
2023-01-20

Zooming around on winged feet is The Amazing Bellazay! Inspired by Z. (age 2) & designed by Uyen Huynh.

0 0
2022-09-08

Today we celebrate with this mighty hero! Amazing Unbreakable Emma is on a mission to make kids’ lives better by finding cures for and other Created by E. (age 9) & designed by .

0 1
2022-06-30

🧑‍⚕️難病薬師

専門性　★★☆彡
癒し度　★★★
特徴　　癒し系の薬剤師です。
　　　　コミュニケーション密に
　　　　服薬指導にあたる
　　　　業界の中ではチートキャラです

I want people to know more about rare diseases.





1 9
2022-03-08

Happy :)

I have which is when the cornea of my eye is warped and light can’t enter my eyes properly, making me unable to see.

Cause is unknown, but it is linked to puberty or large hormonal changes!

There are less than 200,000 ppl who have this

1 29
2022-03-02

la Giornata Mondiale delle Malattie Rare.

È doveroso impegnarsi ogni giorno per garantire ad ogni malato l’effettività alle cure, indipendente se ad essere coinvolti siano milioni o un numero minore di persone, sostenendo la ricerca scientifica.

0 0
2022-03-02

Today is Mobility, brain fog and pain everyday is a struggle.

I’m still on a journey to my diagnosis. But CMT2C is our closet guess at the moment. If you’re curious here’s some info 💕

3 21
2022-03-01

難病のことをもっとみんなに知ってほしい🙋‍♂️
I want people to know more about rare diseases.

難病スレイヤーでは、難病と闘うすべての人たちの様々な難病の情報や活動記録を投稿していきます。
※キャラクターはラフ画像であり、無断転載禁止




54 261
2022-01-22

Henry - The Happy Hammer zooms from place to place with his canine sidekicks Bailey and Carl hitching a ride. Created by H. (age 5), designed by Jen Davreux.

0 1
2021-07-13

Anyways, if anyone would like to support their friendly neighborhood broke gal with a rare disease, here’s my Ko-Fi page!

I make art and do commissions! Just trying to get by. ✨ 🙏 💜

https://t.co/pzRm7HFLQm

https://t.co/9uaG8M3k7R

5 10
2021-03-01

Today is so I made myself a Spooniecorn OC (Spoonie Unicorn) with Zebra print ears.

Meet Zebby QWQ
Tried to give her a ballet-inspired dress since hypermobility is a benefit for ballet dancers.

0 6
2021-03-01

It's Infantile Neuroaxonal Dystrophy (INAD) is a rare inherited neurological disorder with no cure. Help find a cure for Leo at Check out: https://t.co/rxdklPWHXL

48 193
2021-03-01

Today is there are 350m of us worldwide living with 1 of over 7000 rare diseases
For us everyday is until we die without any cure available
Meanwhile we try to Cherish our Cracks to Let in the Light https://t.co/GBsGAiHVKg

0 3
2021-02-28