# epilepsy doose lgs syngap1 dravet rarediseasedayusa epilepsyawareness hope ibcgang cosmos nonprofit keratoconus 28febbraio 難病スレイヤー 難病 raredisease ulcerativecolitis disabledartist bisousforléo rarediseaseday2021 lupus lockdown covid19 sle exeterdiabetes research 世界希少・難治性疾患の日 イラスト イラスト好きさんと繋がりたい prolactinoma pituitarypatient rareendocrine rarediseases cancers

is common but it is also an umbrella that covers many rare diseases like and many others.

14 45
2023-03-01

GM.
So far, 10 badges have been dropped to holders of "classic cars" - check your wallets
Big thank you to for making this campaign possible and for the great technology.
https://t.co/Q0v1Hwko7E

30 77
2023-02-19

Sold! "mustang 1" "mustang 2" & "corvette 01"
Thank you for collecting and supporting with
You have compassion ❤️❤️❤️ and give me 🥰
$OSMO https://t.co/Q0v1HwkVXc

0 4
2023-02-15

Sold! "Porsche, 2, 3, 4" and "mercedes benz 1"
Thank you collectors for scooping these beauties and to bring awareness for
On behalf of my family, especially my grand nephew, You have given me hope 🙌✨❤️‍🩹
https://t.co/Q0v1HwkVXc

1 4
2023-02-12

New drop "classic cars" for
Collectors will receive a badge AND a fantastical animal nft. 🙌
All proceeds will be donated to
18/18 listed on
link below 👇🧵

52 118
2023-02-09

Happy :)

I have which is when the cornea of my eye is warped and light can’t enter my eyes properly, making me unable to see.

Cause is unknown, but it is linked to puberty or large hormonal changes!

There are less than 200,000 ppl who have this

1 29
2022-03-02

la Giornata Mondiale delle Malattie Rare.

È doveroso impegnarsi ogni giorno per garantire ad ogni malato l’effettività alle cure, indipendente se ad essere coinvolti siano milioni o un numero minore di persone, sostenendo la ricerca scientifica.

0 0
2022-03-02

Today is Mobility, brain fog and pain everyday is a struggle.

I’m still on a journey to my diagnosis. But CMT2C is our closet guess at the moment. If you’re curious here’s some info 💕

3 21
2022-03-01

難病のことをもっとみんなに知ってほしい🙋‍♂️
I want people to know more about rare diseases.

難病スレイヤーでは、難病と闘うすべての人たちの様々な難病の情報や活動記録を投稿していきます。
※キャラクターはラフ画像であり、無断転載禁止




54 261
2022-01-22

Anyways, if anyone would like to support their friendly neighborhood broke gal with a rare disease, here’s my Ko-Fi page!

I make art and do commissions! Just trying to get by. ✨ 🙏 💜

https://t.co/pzRm7HFLQm

https://t.co/9uaG8M3k7R

5 10
2021-03-01

Today is so I made myself a Spooniecorn OC (Spoonie Unicorn) with Zebra print ears.

Meet Zebby QWQ
Tried to give her a ballet-inspired dress since hypermobility is a benefit for ballet dancers.

0 6
2021-03-01

It's Infantile Neuroaxonal Dystrophy (INAD) is a rare inherited neurological disorder with no cure. Help find a cure for Leo at Check out: https://t.co/rxdklPWHXL

48 193
2021-03-01

Today is there are 350m of us worldwide living with 1 of over 7000 rare diseases
For us everyday is until we die without any cure available
Meanwhile we try to Cherish our Cracks to Let in the Light https://t.co/GBsGAiHVKg

0 3
2021-02-28

Today is Do click on the link below to read our latest blog post on and so much more!
https://t.co/ZbAKBxsj8g

17 41
2021-02-28

Its Whilst making A Puff Of Smoke I've had the privilege of meeting so many doctors, charities, advocates, patients & carers working towards a better future for people living with a rare disease or battling the diagnosis process. Thank you. You are inspirational.

3 22
2020-03-01

team led by found paracycling champion had a rare genetic condition thought to affect just 8 people in the world!

https://t.co/q43V58TNh7

3 9
2020-02-29

世界希少・難治性疾患の日。
ほんの少しのでも楽しいひとときが、ある事を願って描きました。
見守る猫と犬です。
　

1 14
2020-02-29

Rare Disease Day ．
I drew in the hope that there was a little fun time.
Cats and dogs to watch.
※I'm sorry for any mistakes in English.（英語に間違いがありましたら申し訳ありません。）
　

1 6
2020-02-29

2nd post for Living with a It's one of the most vulnerable things I have ever posted to the internet or my blog & I'd so appreciate help in raising awareness: https://t.co/XDvY7P7lsF

3 7
2020-02-28

On this we will take a look at some of the rare people are dealing with today. Salivary gland cancer accounts for approximately 3% to 5% of all head and neck cancers. Learn more: https://t.co/YeuqQtbTMz

1 2
2019-02-28