# rarediseaseday bisousforléo

Today is Mobility, brain fog and pain everyday is a struggle.

I’m still on a journey to my diagnosis. But CMT2C is our closet guess at the moment. If you’re curious here’s some info 💕

3 21
2022-03-01

It's Infantile Neuroaxonal Dystrophy (INAD) is a rare inherited neurological disorder with no cure. Help find a cure for Leo at Check out: https://t.co/rxdklPWHXL

48 193
2021-03-01

Its Whilst making A Puff Of Smoke I've had the privilege of meeting so many doctors, charities, advocates, patients & carers working towards a better future for people living with a rare disease or battling the diagnosis process. Thank you. You are inspirational.

3 22
2020-03-01