Today is there are 350m of us worldwide living with 1 of over 7000 rare diseases
For us everyday is until we die without any cure available
Meanwhile we try to Cherish our Cracks to Let in the Light https://t.co/GBsGAiHVKg

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Today is Do click on the link below to read our latest blog post on and so much more!
https://t.co/ZbAKBxsj8g

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Monster and Me Campfire Christmas! My cane is a candy cane! “Believe in the magic of a moment even when it’s a difficult one.” Visit my to read about Monster and Me @ https://t.co/PB9vRJNFv2

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When managing chronic illness, it’s important to remember that “an obstacle is often a stepping stone.”

And if you need a hand to help you take that first step, we’ll be there for you. 🧡

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“And it is through fantasy that children achieve catharsis. It is the best means they have for taming wild things.”
-Where the Wild Things Are

Little Kam. Working on some new art. https://t.co/PB9vRJNFv2

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Its Whilst making A Puff Of Smoke I've had the privilege of meeting so many doctors, charities, advocates, patients & carers working towards a better future for people living with a rare disease or battling the diagnosis process. Thank you. You are inspirational.

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It’s today! 300 million people worldwide have rare diseases, myself included!
I have a pesky little virus in my throat that means I have to have regular operations but I feel so lucky to have had exceptional care under the NHS throughout… https://t.co/luT12yWVUG

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team led by found paracycling champion had a rare genetic condition thought to affect just 8 people in the world!

https://t.co/q43V58TNh7

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世界希少・難治性疾患の日。
ほんの少しのでも楽しいひとときが、ある事を願って描きました。
見守る猫と犬です。
 

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Rare Disease Day .
I drew in the hope that there was a little fun time.
Cats and dogs to watch.
※I'm sorry for any mistakes in English.(英語に間違いがありましたら申し訳ありません。)
 

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2nd post for Living with a It's one of the most vulnerable things I have ever posted to the internet or my blog & I'd so appreciate help in raising awareness: https://t.co/XDvY7P7lsF

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Happy Holidays and Merry Christmas (Eve) from Monster and me! Psst...Look for the squirrel 😉🎄🎁❄️🐿 🥜

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“Imagination will often carry us to worlds that never were, but without it we go nowhere.” - Carl Sagan

Seasons Greetings from Monster and me!!🎄What are your warmest holiday traditions?

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Living with a for It's one of the most vulnerable things I have ever posted to the internet or my blog & I'd so appreciate help in raising awareness >>> https://t.co/XDvY7P7lsF

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Living with a for It's one of the most vulnerable things I have ever posted to the internet or my blog & I'd so appreciate help in raising awareness: https://t.co/XDvY7P7lsF

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Living with a for It's one of the most vulnerable things I have ever posted to the internet or my blog & I'd so appreciate help in raising awareness: https://t.co/XDvY7P7lsF

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Living with a for It's one of the most vulnerable things I have ever posted to the internet or my blog & I'd so appreciate help in raising awareness: https://t.co/XDvY7P7lsF

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Do you know which are the chances of being born with Chromosome X linked Is there a for this ? Soon new vid answering these and other questions.. it’s in the kitchen!

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